YEAH!!!!!

I just wanted to quickly update on our situation. After much distress last night, as I finally closed my eyes, my prayer was this, "God, if Keyan is supposed to go to this rehab hospital, you are the one who will have to make that happen. Please let this bacteria be our guide. If you want her there, open all the doors wide open and make it happen...it is beyond me!" This morning, before I was even up and around, an e-mail had been sent from the doctor to the infectious disease person, who than sent an e-mail to the admissions lady at Mary Free Bed and everything has been cleared for Keyan to go to intensive inpatient therapy. She needs a private room, but other than that, she will have access to ALL common areas, and be treated no different. I have verified this with Mary Free Bed, and they said, yes, everything is moving forward for her to come "as is"! The preparations are underway for a transfer on Thursday. We are so hopeful that this session of rehab will open pathways for Keyan that she has never been able to do herself. I firmly believe that she will come out of this not only "tuned-up" but stronger and more able bodied than before. While I wish we were just going home, I am putting that aside and am now excited and hopeful to see Keyan world open up to her in new ways.

To top it all off, she is headed to surgery at any moment, but we just got word that the neurologist has added on a muscle biopsy to the agenda. We could not be more thrilled. We have been asking about this test for the last year and have been getting no where. Today, the nurse practitioner just walked in and asked if we would be open to the testing....open, we are ecstatic! The results are not definitive but should at least give us a few more answers and guide us to further needs. They will be testing for mitochondrial disorders as well as some other things.

Anyhow, a much happier post as we head off to surgery...I will post again when things are settled down. Thanks for all of your encouragement. It means a lot.