Finally, an update!

I am so sorry that it has been so long since I last updated. Our days are busy but progress is slow so there isn’t a whole lot to report every day. Keyan is working so hard that by four in the afternoon she starts to get a little crabby…a mommy does too I think. Her days are filled with therapies, playing, crafts, movies, and chasing the bigger boys around the hall in her wheelchair. It is so funny to hear her little voice “screaming”, “I’m going to get ya!”, as she goes tearing down the hall with me trying to keep up with the IV pole. it is quite a sight. It has been very encouraging to see her make friends with all of the other kids, never discriminating based on age, abilities, or anything else.

One of the best things about being at a rehab facility versus an acute care hospital is the ability to go outside! Keyan is never thrilled about it because we don’t usually get a chance until her crabby part of the day so the wind is always bothering her and she just wants to watch a movie, but it is amazing how a few minutes in the sun can refresh my soul.

She is to the point where she is alternating between using the walker and the gait belt. Her balance is still an issue but she is learning to correct it herself. Her endurance needs to continue to develop and than she will be able to do more on her own. While talking to the physical therapist today, he said that it will likely take months before she is able to do all types of different terrains by herself, but that summer is the best time to relearn this type of thing because the outside lends itself to natural challenges.

I end my post with a couple of sleepy pictures. She works so hard during the day that I can’t help but capture these restful and peaceful moments. She is such an amazing little girl and it has been fun to see her leave her heartprint on a whole new group of people. God gave us such a special angel, and people surrounding her can definitely feel it.

Last night, we were woke up at 1:30 in the morning due to a tornado drill! We all had to move out into the hallway until the weather advisory had cleared. It was completely insane, but Keyan slept right thru it...that is how tired her body is. Healing take a toll on her that is for sure. Think of us tomorrow because we have a big team meeting in the afternoon to update on her progress and to talk about a discharge date….I will keep you all posted!