A very busy day

Ugh, I sit here trying to wrap my head around the day and it just gives me a massive headache. After some further miscommunication with the operating room, she finally got into surgery around 10 this morning. They placed the broviac on the left side of her chest, took the PICC line out of her left arm, and took the skin and muscle biopsy from her left thigh. She is experiencing some discomfort from both the broviac site and the biopsy one, but we are able to keep it under control with some Tylenol. I am so glad to have it all behind us. We will of course be anxiously awaiting the results form the biopsy, but they could take anywhere from 7 days-6 weeks! Nothing like keeping us in suspense.

Soon after she was back up to her room, we started working out all of the details for her transfer to Mary Free Bed. I actually went and took a quick tour of the pediatric floor, they even have her room waiting for her! Yesterday I was so excited about going, but today I was dealing with a lot of anxiety, worry, fear, and wonder. I wish I didn't have to do this by myself, but after being over there, I feel better about the whole thing. It is a smaller floor than the one we are on now, but it has a very large playroom and therapy room right on the floor. The staff was very friendly and overall, I think things will be alright.

So, as long as everything goes as planned, the ambulance will be here to pick us up at 10:30 tomorrow morning. There have been hundreds of intricate details to work thru but I think we have done it. I was pretty emotional today and I couldn't really put my finger on why. While Keyan was taking a late nap this evening, I found some time to give it some thought. Keyan and I have spent more time on 9 center in the last 10 months than we have at home. I have made some very real friendships over the last five years and it is always a little sad to say goodbye, but this time has been different. We have been in crisis mode for most of our three week stay here. The nurses, doctors, therapists, aides, and volunteers have walked right beside me thru the whole thing. The have been scared for us, and scared themselves when Keyan had her seizure and continued to act so not herself. The staff here on 9 center see trauma, sickness, and pain everyday, but they have not lost their compassion. They have cheered Keyan on while she was trying to use the walker, and than looked at me with tears in their eyes, because they felt my frustration and pain. Why am I emotional about leaving tomorrow? I am leaving my support, my cheering squad, my advocates, my "peers" in this medical life, and my friends. I am going somewhere where they don't know Keyan and all of her quirks (and mine for that matter!). I have to prove myself to another group of people, I have to earn the respect of a whole new team, and I have to open myself up in order to gain their trust. Boy, I sure hope I am up for the challenge! I am hopeing for great things. Off to a new adventure!