"No Do-Overs"

Dear Family, friends, and all who love Keyan,

All along this journey I have done my best to be up front, honest, and raw with what we are facing.  Today is perhaps one of the hardest posts to write since I started blogging, although I know there are harder ones coming.  For several months now, we have watched Keyan's body get weaker and weaker. We have witnessed the slow decline for years but at this phase the changes are happening rapidly.  Yesterday afternoon, Paul and I, along with my Dad, sat in our living room with our Hospice team to understand what is happening to Keyan's body.

With tears flowing and so many emotions pouring from my soul, I want to share with you all that our days are very limited with our precious girl.  Her body is failing.  Her disease is progressing and there is no stopping it.  No one can predict with any amount of certainty what her body will do but we are talking a matter of days/maybe a few weeks.  Keyan is spending more and more of her time sleeping and this will continue to increase. 

I wish that I had the time to share this with all of you personally.  It has never been more apparent how far our girl's heart has reached.  Whether you have been on the journey with us from the beginning or are relatively new to our story, you are part of our village and we can't express enough our sincere gratitude for the prayers and support. We need them now more than ever.

For now, we are sort of tucking ourselves into home.  We are picking and choosing what to stay involved in as it comes.  Our motto is, "There are no do-overs" and we are doing our best to navigate what that looks like for each of us. Taking time to soak each other in has never been more important and yet the distractions of every day life are healing in their own way.  That was never more apparent to me than during our trip to Florida at the end of May and we are continuing to just be in each others space.

We ask for your continued support.  Please feel free to call, text, or message.  Know they are being read and heard even if you don't get a response.  We are so blessed to have a community upholding us as our knees buckles with the weight of the realities we face.  It boggles my mind how we have known this day might come for 12 and a half years and yet now that it is here, I am in shock.  Please take the time to hug your loved ones tight today.  Cherish their smiles, your mischievous children, tell them you love them! Be present in today and don't let the day slip by without expressing your love.