Quality

Today was a day full of adjustments for all of us.  It is interesting how the kids still go to my mom for everything despite the fact that I am sitting right there and poor Keyan is having a difficult time not being the only child.  Of course, it is just as hard for me trying to transition from sitting in a very quite little from for two months to the “chaos” of family life.  But, despite all of that, we had a great day and made sure to live it to the fullest.  Abagayle is camping overnight with one of our angels, Grandma Gretta, and Jamahl spent the evening with a friend, so that is why they are missing from some of the photos.

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I was determined to get Keyan in the pool and that we did.  We wrapped all of the IV connections in tegederm and we double bagged the backpack with all of her stuff in it.  She was so happy.  She would like to be in the water more, but with the central line, this is as good as it is going to get, but I do think that we did a pretty good job, if I do say so myself!  We had to deliver some medicine out to Abagayle at the beach, so we had dinner out there and went for a walk.  Keyan had so much fun maneuvering her wheelchair.  Look real close and you can see that my friend Debbie brought her some little gloves to use when she is pushing the chair by herself.  She loves them and thinks that they make her go even faster!  I realized today that although a lot has changed in the last three months, we are adapting to those changes and trying to embrace life. The days will not always be as carefree as today, but we will meet them all head on!