Small steps

We had some small moments of Keyan showing us her personality today and like I said in my previous post, I am trying to hold onto those little things. She had another rough night and I spent much of it holding and soothing her. As I did that I really had time to think about how her body is under such attack and so my goal for today was to try and not worry about what might be...of course easier said than done. So, while her blank stares are so hard to watch, I tried telling myself that it was just her bodies way of healing and I honestly didn't stress about it AS MUCH....we will see how tomorrow goes.

She had physical therapy, occupational therapy, and speech therapy for about 10 minutes each and she worked so hard. After every session, she immediately went to sleep but it was good to see that although her face does not show it, her spirit is still there trying to fight. It is very hard to think that just a week ago, she was telling us all that she did not need any help, but again, she tolerated therapies longer today than yesterday and it just a slow process. Her back has been bothering her for the last three days and it seems to be getting worse, so much so that she even told the doctor it hurt today. They are running some other tests and check for a muscle injury and some other things. I am trying to just use Tylenol for her pain, but am constantly wondering if that is good enough. I just hate to add more medicine! All of these decisions are so strenuous and can be such a heavy burden.

Grammie and Poppie were able to make it up and it was so good to see them. You know, no matter what, it always feels good to see your parents and get a hug from them. I know it was hard for them to see Keyan so sick but she liked snuggling with both of them. We moved her to the couch and she took turns leaning on my mom and dad. She had some smiles, laughs, and a few tears too. (as did the adults in the room) They promised us both they would get up again soon and I am going to hold them to it.

Today I am thankful for the very small steps I can see Keyan taking towards healing. I am thankful she was able to make appropriate choices when asked about books, and I am thankful that her mind is allowing her body to rest. Today I am most thankful for a caring group of people who are taking care of her here at the hospital. Our nurses, therapists, nurse practitioners, case managers, doctors, and the cleaning staff have shown real concern for our little girl. They patiently put up with my opinion and "expertise", and are willing to lend a listening ear whether I am sharing my fears, asking my millionth question, or venting about the cafeteria! I fell so blessed to have them taking care of one of my most prized possessions.