The fight continues...

Keyan waking up this morning...it was a snow day and she was determined to sleep in!

Some of you are aware that we have been in a battle regarding our nursing hours for Keyan.  The state says that because she had not been in the hospital or the ER during the 6 month period of time that they looked at, and because she goes to school, they are only obligated to provide her with 8 hours of nursing a day instead of 12.  I will not waste my time arguing these points here, but will just say it is absurd.  

Last Tuesday, February 2, we went before a judge to appeal the decision to reduce her hours.  It was an intense hearing where our integrity and dedication to our children was questioned and our words were used against us.  It was frightening, nerve wracking and took every ounce of my self control to behave in an appropriate courtroom manner.  We walked out believing that we had done everything that we possibly could do.  It was clear to us that afternoon that if the judge held the ability to change Keyan's classification, he would and we would win, but if he could only rule on whether the state acted within their rights based on the classification they gave her, we would loose.  

The judgment came in the mail today and the judge upheld the state's decision to reduce the hours.  It is exactly as we thought, he could only rule on the legality of their decision.  He wrote right in his judgment that it was clear that Keyan has significant issues and requires enormous amounts of care.  He urged us and really her nursing agency to seek a reinstatement of her hours with documentation that shows a more accurate picture of her condition.  We as her parents can not ask for this review, it will come from the agency but we have them on our side and I know they will do whatever they can.  This process is tiring, discouraging, and so many more things that I don't even have the energy to name, but it is not within me to give in.  After the hearing, we now have documentation that shows they have her classified wrongly.  We just need to get it into the right hands and jump through the right hoops.  Meanwhile....we do our best to not panic, take care of our kids as best we can, and juggle the hundreds of balls coming at us.  Thank you for your support throughout this ordeal and please forgive us if we seem discouraged or withdrawn.